Today while one BabyCenter.com I found a support group for parents who children have been diagnosed with a Cystic Hygroma. Searching online you find very little hope. Most everything is negative. However the support group is much different. There is so much positive in there and it is coming from REAL people. Not just studies and cases like you find elsewhere. It was really what I needed. I am reading so many stories of women who babies have much larger Cystic Hygroms than what Baby K has and they have completely resolved and their babies at 100% healthy!!! I am hoping that our baby is one of those babes. That have all mentioned getting more ultrasounds than what we have had. It seems like a week after finding it they have gotten another one to check the size to see if it has grown, shrunk, stayed the same or resolved. When we go to our midwife appointment on Thursday I am going to mention that & see if we can get one. It makes me so anxious just waiting. Maybe they are waiting for the blood test results but I feel like for me this would be so helpful. At least give us a better idea of where we are at while we wait for those results. I know I have said it a billion times but it is so frustrating not know!!! I just need some answered. SOMETHING!
I want to be able to make plans. I want to get excited about things. I want everything to be okay so I can continue with that happy life we were already creating! We have so much going on. Vacations, competitions, weddings, holidays, our wedding anniversary...so much to look forward to!
Today is also 15 weeks pregnant.
While I am not looking all too fabulous, I am feeling better than last week. Sadly, all food makes me want to hurl. That's fun.


0 comments:
Post a Comment